“The scariest moment is always just before you start.” ~ Stephen King

So, a friend was talking to me about one of their family members who has been formally diagnosed with bipolar but refuses to get help with it even though they are having trouble functioning in their day-to-day life. When I asked my friend: “What all is family doing for him?” their response was this: “Most of them are fed up…they are stepping away since he won’t get help and it’s so much to handle.”

Clear as mud to me.

Hmmmmm. Now first of all, I know how difficult it is to deal with someone who has a mental illness. I’m not the only one in my family with a mental health issue and there is also a lot of alcoholism as well, so I know it’s tough to be there for the mentally ill day after day. Then, when you add your own mental health struggles into the equation (I actually got through College algebra and trig with A’s. How in the name of all that’s holy I did it, I’ll never know. 🙄) it can be exhausting.

I think one reason for this is the idea that ‘if they would only get help, they would be OK’. Hmmm. Not true. ‘Getting help’ doesn’t mean your struggles are over. It means you are taking the steps to get as much help as you can in ‘handling’ your struggles. For example, heart disease is the #1 chronic physical condition in the U.S. (The CDC) and although there are ways to slow it’s progression, there is no way to cure it. So yes, meds, exercise, and a healthier diet can all benefit the person, but they are still going to have heart disease with consequences despite the intervention/help they are getting.

By the same token, we don’t expect someone with diabetes to suddenly take a couple shots of insulin and be ‘cured’ to where they need no further treatment; and when you say it like this, you can hear how ridiculous that even sounds. And, if that is the case, why do we think getting on a med or 2 and talking to a counselor a couple times a month is going to make everything better? Hmmm.

Think about this: heart disease and diabetes greatly affect a person’s life, but don’t all mental illnesses do the same? Don’t all of them affect brain function and as a result, lives? One day my sis and I were yacking and we were talking about how hard it is to live with our respective mental illnesses and we both said this: “I wonder what it would feel like to be ‘normal’ for a day or two?’ It was hard for either one of us to imagine since we’ve both been experiencing our issues for decades.

I’m still dealing with my freaking kidney stones (I go to a specialist on Monday who is going to stick a catheter up my urethra to see ‘what’s going on down there’…charmed, I’m sure… 😐) and as a result have some pain periodically through the day, can’t pee without it being bloody (there is no way on God’s green earth I could be a nurse or doc…), can’t eat without feeling like I’m going to throw up for a couple hours after, am tired all of the time, and am so bloaty (ugh…🙄) that I look 5 months pregnant (no, ma…put the phone down…I’ve been through menopause). I was telling Bill this week that I just wanted to feel ‘good’ for a day or 2 since I’ve had this since September. In fact, I kinda forgot what it’s like to pee yellow. 😳

If my ‘stones’ are as cute as this one, I’m going to make a necklace.

But, no one is ‘fed up’ that I have this (well…almost no one…) and they know it’s not my fault (I’m thinking of you saying this right now, Susan 😘). I’m doing what I’m supposed to be doing (drinking lots of water, resting when I get tired, etc.) but of course that’s not going to miraculously cure me, is it? It’s obvious something needs to be done and more time has to pass. And, I also know that talking about kidney stones and pee is easier than talking about bipolar, depression, anxiety, PTSD, etc. I wonder why that is? Urine is better to talk about than bipolar? “Hi boss…I can’t be there today…I have a kidney infection and stones and am having a really tough time with it.” OR…”Hi boss…I can’t be there today…I have bipolar and am currently cycling through a depression that people are pissed about because they say I should be happy because I’m in love and it’s the holidays without understanding that moods and emotions are 2 different things so I’m being blamed for something I have very very little control over because my brain is fucked up and theirs might be too but if they are experiencing issues it’s different.” Now, which one do you think would be ‘best’ to say? Riiiiigggggghhhhhtttttt. The kidney one.

Look, I know how frustrating it is to see people not get help, or not get better even with help, or being a different person based on the day, or blowing up at you because of their own anxieties, or not being able to function day to day because of their depression, etc. I get it. I get how hard it is to be around those of us who are unpredictable. Who can’t always explain ‘where it hurts.’ Who you can’t really understand. I can’t tell you how many times I heard this in my life: “I just don’t understand you.” Well get in line, baby…because I don’t understand me either.

I know what I have and I know what it makes my brain look like and do, but I still don’t ‘understand’ it. I still don’t get why it’s in my head and how it controls my moods and how it makes me feel, etc. It was like doing my trig theorems…I got ‘how’ to do the steps, I just didn’t understand what the hell it was all for.

Getting help for mental illness isn’t as easy as people think. It took me decades to get the real help I needed and I still struggle everyday. It’s better, but I still have a disease. Sometimes just battling our minds day after day saps our energy to the point we have nothing else to use outside of ourselves. Seeking help is scary: Where do I go that takes my insurance? Where do I find a counselor that specializes in bipolar or eating disorders or depression (just like we often need a specialist for physical issues, we also need the same for mental ones. Counselors are not ‘one size fits all’). What will meds to do me? What if I’m misdiagnosed and any meds prescribed hurt me more than help me? What if the doc feels I’m so depressed I need shock therapy? What if my meds cause side effects that stymie ‘me’ and who I really am? What will my colleagues say if I talk about it? How will my friends handle it? My family?

In some families, friendships, work relationships, people pull away from you when you need them the most…when you admit to what you are fighting. So ‘getting help’ may not be the cure all for relationships that have been affected by a mental illness. In fact, it just might make some people walk away from you: “Glad you finally got help but you should have done it a lot sooner before so many things happened and I gave up on you.” Hmmm: “Glad you finally went in to the cardiologist and found out you have heart disease and are now eating better and exercising. You should have done that earlier, before I got fed up, because I really don’t feel close to you anymore and it makes me angry when you talk about this because you waited too long to go in and I’m really actually questioning if you actually do have ‘heart disease’ since you’ve been pretty much OK up to this point. Why couldn’t you have just started eating better a little earlier in your life? And hey, we all have things wrong with us. Duh.”

So, what DO people with untreated mental illness need? An ear. A safe place. A chance to talk about what they are feeling, thinking, etc. A conversation about why they aren’t seeking help. A promise that when they do seek help, you’ll continue to be there for them. An understanding that so many people hope that whatever is happening to them in their head will just pass…that it’s just a transitory thing. A willingness to say that you’ll go to appointments with them until they are able to do it themselves. A realization that taking a Prozac today isn’t going to make them deliriously happy tomorrow. An awareness that what does work today may not work in a year. And finally, the tenacity to keep being close to the person as they navigate a very scary journey on the road to treatment.

When are we going to start treating mental illnesses as illnesses? When are we going to understand that those of us with them didn’t ask for them…didn’t do anything to cause them…didn’t get them to piss you off? Why can’t we have compassion for all illnesses…diseases? Why do we give up on those who need help the most but are having the hardest time getting it? Hmmmmm…I’m not sure I understand.

Kristi xoxo